The Tale of the Hangry Teenager
This morning I awoke with thoughts of the last several days rolling through my mind. Jayde-Rhiannon 's final day in the hospital, my best friend asked me while visiting, “What do you do all day?” I responded, “Take care of Jayde, talk to doctors, fight with nurses who don’t listen, take care of Jayde, talk to doctors and take care of Jayde.” Sounds kinds of boring, right? Jayde and I spent seven days together, sleeping a few feet away from each other. We did not watch movies or TV, as we had planned. I turned on my laptop twice, for a total of one hour. I took several magazines and two books, they remained in the suitcase. I began the Facebook updates because it was easier to make one post than answer twenty or so texts and phone calls. The posts also freed up more time to concentrate on Jayde. When she finally regained her voice, we talked a lot. The silver lining of the entire experience…because I always need to find one…was the quality time with Jayde. If we were sitting on a beach instead of in a hospital, it would have been the recipe for a perfect girl’s trip.Alas, the “girl’s trip” is over.
#jrsjourney #POTS #dysautonomia #SMAS #SMASYNDROME #silverlinings