Showing posts from August, 2021

Myalgic Encephalomyelitis puts the Chronic in Chronic Fatigue Syndrome

In our family, there are no truer words than, music is food for the soul. Growing up, I would fall asleep at night listening to my mother playing her piano. It was soothing. Anytime I am happy, sad, or feeling indifferent, music is a close companion, so it comes as no surprise that both my children feel the same way. Especially when it comes to live music. Green Day, Weezer, and Fallout Boy. They were all Jayde could talk about for weeks. Brett's mom bought tickets for Jayde, Brett, and his sister Greta to attend the concert at Hershey Park. I spent a few days ensuring Jayde had all the necessary supplies, from extra clothes and medications to plenty of frozen bottles of water and Gatorade and snacks in the cooler. She spent the week leading up to the show resting. Saving her spoons for the big day. I gave her a mani/pedi the night before and washed her hair. The plan was for Brett to drive my car so they could easily take Jayde's wheelchair, and she could lay in the back if ne