She is My Miracle!

When Jayde was a baby, Chris thought pink was too basic a color for her, his favorite color to dress her in was a beautiful shade of lilac. Who knew the color purple would become so symbolic. It has been a challenging year in the SMAS community, as too many warriors have succumbed to this disease. Each death is a stark reminder of the anguish this illness can inflict on its patients and their families. A few days ago, I was having a candid discussion with my mother on the graveness of Jayde’s health. I explained my latest concerns over the two types of SMAS – acute and chronic. The long-term prognosis for acute SMAS is far better than that of the chronic type, which Jayde has. Acute SMAS is a sudden onset condition from a dramatic weight loss due to illness, surgery, or injury. This type generally responds better to conservative therapies or surgery and, in time, heals. Chronic SMAS is a long-term form, usually diagnosed once the symptoms are too severe to be ignored by doctors a