Sometimes Mamma Bear Needs to Make an Appearance

 


This morning, Jayde-Rhiannon and I spent an hour and a half with her primary care physician. During a phone call with my mom on Tuesday night, she inquired about Jayde's upcoming visit. I told her, "If you hear an explosion coming from the Cracker Barrel area of town, no worries, it is just your daughter." She laughed but wholly understood.

Thankfully, there was no big explosion, just two much-needed mini outbursts - one from Jayde, the other from me. After Jayde informed her doctor, she did not feel she was receiving proper care. I went into great detail regarding the mismanagement of her health from almost all physicians involved. I finished with, "I am watching my daughter wither away right before my eyes. Either you will be the doctor who figures this out while helping her heal, or we will find a doctor who will. If this is out of your scope of expertise or you are too booked to take time to focus on Jayde thoroughly, please speak up so we can find someone who is willing to help her." She apologized to Jayde, strategized with both of us, increased her weekly infusions to three times a week, wrote down her cell number, and sent us to the lab where Jayde had thirteen vials of blood drawn.

For Jayde to receive proper health care, Mamma Bear needed to come out to play. I wish that were not the case, it is definitely not the first time, and I am confident it will not be the last, though you will never hear me making any apology for advocating for either of my children. This morning, I barely contained my pride as I quietly observed Jayde assertively using her voice, advocating for herself. Most days, she is incapable of thoroughly advocating for herself, but despite how poorly she felt, today, she roared.

We are still unsure precisely what Jayde is facing. We only know it is autoimmune in nature. The severity is what needs to be determined. Many more tests and appointments are to follow, hopefully keeping our Baby Girl at home and out of the hospital.

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