In A Perfect World, There Would be More Answers and Less Questions
I am beyond grateful to have my sister, mom, aunt, and
mother-in-law's constant contact and their help behind the scenes, being my
pillars, supporting me so that I can better support Jayde. It truly does take a village, and these women are my tribe. I know my post from last
night was not easy to read. It was challenging to write and share. Yesterday
was mentally and emotionally messy. In life, sometimes, you need to create more chaos to
clean up the original mess. Jayde is still struggling to process everything happening
inside her body right now, but she is mentally doing somewhat better.
Witnessing lifeline helicopters flying in and out, at all hours of the day and
night, helps keep her current circumstance in perspective. Regardless, we are secure in knowing she is where she needs to be to receive the best possible care.
To help everyone following Jayde-Rhiannon's journey better
understand how we arrived here, she has lost twenty-four pounds in the last
three to four months. Her body had begun breaking down. I do not think we
realized just how bad it was until we were here for a few days. Her tests from
yesterday were all excellent. There is no issue with her port or the SMA
compression worsening. Because of this, her surgical team has tapped out. Her
amazing primary surgeon Dr. Jelin is still checking in but medical has now
taken over her case.
Our nurse, last night, Anna Lou, was new to us, and she was precisely
who Jayde and I needed. This morning we met part of Jayde's new medical team. We
will meet the rest this afternoon. This young man possessed qualities every
doctor should strive for, attentiveness, compassion, and thoroughness. More testing is
scheduled for tonight and tomorrow. The field of what is wrong with Jayde has
widened. It seems bizarre to look at the possibilities and say, "I hope it
is this one," knowing it may not be any of those options.
After my post yesterday, we ventured off the 10th floor for a
change of scenery. Though it was a short adventure, it was definitely needed. We enjoyed dinner outside and enjoyed a few brief moments at my favorite place in the hospital. In the meantime, it looks like we will be here a bit longer.