When the Unexpected Happens

The Smile I live for

Barely a year ago, we began traveling down a new path in Jayde's healthcare journey. Once a week, we check in at our local hospital's pediatric unit so that Jayde can receive IV therapy. 

Throughout this journey, we have become accustomed to bracing for the impact. We were informed from the beginning that a port was a likelihood. As the weeks turned into months, the possibility became more of an inevitability. Upon her recent EDS diagnosis, as hesitant as we were to take the next step, we knew Jayde receiving a port was now necessary. 

The days following her port surgery were emotional, especially for Jayde. Seeing the new incision, soon to be another scar, is a constant reminder of her poor health and her body's shortcomings. There was nothing I could do to console my Baby Girl except put my arms around her and allow her to feel the many emotions she needed to feel.

Today was her first IV therapy since surgery. Time to test out her new port. She was anxious all day. While I was on the verge of tears, contemplating what she was about to endure. The nurses rose to the challenge, putting an uneasy patient and her mom at ease. No three, four, or five sticks this time. It was one and done. There have not been too many good days along this journey.

 Today was an exception. Today is a good day, and on this journey, we will take everyone we can get.

Jayde's port kit

Her line being flushed for the first time

All hooked up and ready to flow


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