Twenty-four hours in a day, seven days in a week, 8,760 hours in a year. It has been a little more than two months since this battle, for time, took on a life of its very own. Time is no respecter of persons. Simply put, it is a precious gift. A gift we take for granted in the routine of life, almost assuming we have an unlimited supply. For all our hopes and wishes, we cannot pause time, nor stop it. We can only cherish the moments allotted to us, comprehending the gift we have been bestowed.
November 18, her birthday, another milestone; 84 years young or 735,840 hours of living. Dinner at her favorite restaurant, surrounded by the love of her family. What began in 1950 as a simple family of three, two years later became a family of four. Now we have grown into a family of eighteen. Small by some comparisons, still it is ours–mine. The few who are aware of the truth know this will most likely be her last birthday celebration. The gift of knowledge also gives us the gift of time. A bittersweet gift–nonetheless, it is a gift.
A routine checkup a few days prior confirms the reason for her fatigue and malaise. The word we all fear rears its ugly head. Still, there are more tests to run, scans to be done. We know the reality yet cling to all shreds of hope and faith. Thanksgiving is less than a week away. Doctors will need to wait. Her knowledge of what awaits her can wait. If the worst is to be, the least we can give her is this precious time.
Thanksgiving is another gift. A long overdue trip to Tennessee, priceless moments spent with her beloved family–while she is still blissfully unaware. Scans and doctor's appointments follow. The scans confirm our worst fears–still, we choose to remain silent. Our silence is synonymous with her peace. The peace of not knowing this is her last Christmas. The peace of being unaware her time on this earth draws closer with each passing moment.
Days before Christmas, I enjoy a day with her doing routine things we have done countless times before. Her genuine smile and excitement upon my arrival is my gift, and it is precious. We spend the day Christmas shopping, grocery shopping, and having dinner at her favorite local diner. I wash dishes and help her with other insignificant chores her frail body no longer allows. We browse through a box of old photographs she has excitedly dug out of the closet. It does not matter what we do or where we are–all that matters is treasuring this time. As we grocery shop, I hold her arm supporting her. Weary, we have already done too much for the day. We walk through the market, something we have done together hundreds of times in my lifetime. Except on this occasion, she is not holding my hand or taking care of me. I am taking care of her. Though it saddens me, I am honored to perform this one small task for her. She knows she is not well, though she still does not know to what extent. As I help her into my car, she remarks, “It is not fair. I never drank, I never smoked, I did everything the doctors told me to." As I buckle her seatbelt, I quietly redponded, “I know, Mommom, it isn't fair.” As I prepare to leave, it is obvious our day together has depleted her energy. My heart aches. I want to hug her and make her feel better, as she has done for me so often throughout my life. Though it is late, and she is concerned about my drive home, I sit for just a few minutes longer…wanting to extend our day that I am keenly aware will become a precious memory.
Christmas day, I snuggle next to her on my sofa, grateful for the holiday–thankful for more time. Trying to take in each moment, hoping time will not fade these treasured memories. She places her frail hand on mine, and I am still. Contented by the gift of family. Wishing I could make this day last forever.
New Year's Eve, I call her before the stroke of midnight. I am disappointed she has chosen to be home alone instead of surrounded by her family. For all her feebleness, she is still the most strong-willed woman I have ever known. Though I have no doubt, it is why she has lived a full life. Our conversation is similar to the many New Year's Eve calls we have made over the years. I hang up the phone, acutely aware this is the last New Year's call I will make to her. The idea that in a few days, she will know what we know weighs heavy on my mind as I drift off to sleep. It felt wrong to celebrate the ushering in of a new year, with the knowledge it will bring significant loss.
The holidays are now over. She meets with her oncologist. He is a kind and gentle man. Though his demeanor is insignificant, he could be the kindest man in the world, and I would not care. Our hope and faith have been replaced with inoperable and incurable. This man has taken away our gift of time. Instead, replacing it with the knowledge of how little time we have. I know he is only the messenger. Still, it is a message none of us are prepared or desire to hear.
As I sit next to her talking about everything and nothing, she reiterates the same sentiments from several weeks ago and a new revelation, “I never drank, I never smoked, I stayed away from all the foods they told me to. I felt good on my birthday. Before I knew." She pauses and sighs, "I wish I did not know.” Her words pierce my heart, reminding me of the phrase I have heard many times before, BC – Before Cancer. I look down at my watch, realizing I have stayed much later than planned...still just a few more minutes. I prepare to leave. After we have already said our goodbyes, she makes a point of getting up and walking across the room to hug me tightly. One more time. Today she learned what we all knew. There is nothing left to do except pray she can find the same peace she had when she woke up yesterday. Before the knowledge that cancer is determined to steal her time. I walk into my house, and Chris stops what he is doing. As I collapse into his embrace, no words are necessary.
More scans, labs, and doctor's appointments come and go. Each doctor's appointment strips away at the tiniest shreds of hope lingering in our hearts. She is indecisive, as she is faced with the most challenging decision–quality vs. quantity. Regardless of her decision, her doctors can offer no guarantees. Still, a decision must be made, an answer must be given...to a question none of us can answer. Maybe no decision is the decision. She has made one decision: she does not want to know the limits cancer has placed on her remaining moments in this world.
The routine of daily life exhausts her. Her nutrition and rest are vital to her continued existence. Her daughters alternate with her care, tending to her every need, keeping her on a scheduled feeding and nap time. She has become the child. They have become the parent. She discusses the desire to have her hair professionally done, not an unusual request, yet uncharacteristic. The origin of her simple request brings tears to my eyes as I fully grasp her reasoning. She is shy and self-conscious. The thought of anyone she does not know taking care of her hair is unsettling. I set up a consultation with the most loving and qualified woman I know for the task. After some gentle persuasion from my mom and me, she eventually acquiesces. Her hair consultation goes well. The appointment is set for January 25. With the limit of time, the trivial moments of mundane life have become momentous.
In our family, we hug, we kiss, and we say I love you. For the past few months, every hug, every kiss on the cheek, or the forehead, every I love you has been overshadowed with the knowledge I do not know how many more times I will have this opportunity with her. With no intentions, reality is cruel...denial is a futile use of time...while acceptance leaves an inconsolable pang, which brings an unending wave of emotions.
I know how blessed I am to have this gracious, loving, kind woman who has been a part of my life from my first breath and all the breathes in between. I know how fortunate I am to have someone who makes saying goodbye so difficult. She has been my protector and defender, my confidant, my friend, my family, a piece of my heart, and so much more…she is my Mommom…the perfect combination of mother and grandmother.
No amount of time with her will ever be long enough.
Update: On the evening of June 27, 2018, my Mommom left her earthly body. She waited until everyone was gone for the day, except for my mother. A month before she passed, she asked if I would write something to read at her funeral. As I fought back the tears from her request, I told her, "It would be my honor and privilege." Immediately after she made this request, I recalled this piece I had written about our gift of time. I will always be grateful I had the opportunity to read that last main paragraph to her while she was still here with us. My daughter captured this photo as I read it to her. What I would not give to hold her hand, talk about everything and nothing at all. You see, even with the gift of time, there is still never enough.
Popular posts from this blog
There is no rhyme or reason. It is 4 A.M, and I sit on the floor beside her, rubbing her back. Except to just be here, I am helpless to make any real difference at the moment. I am the best friend who holds back her hair, except this is not from some stupid self-inflicted debauchery. This is her life. She has chosen to make her bed on the floor. I contemplate doing the same to be closer to her. The regular companions snuggle in around her. They are familiar with what the sounds mean. She is finally asleep in her bed. I check on her one last time. I pull the blankets up to my chin. It is now 7:20. Jayde's bathroom and trash can are once again clean - hopefully, for the final time. The laundry from the night's episode lays in the hallway; it can wait until later. Chris is peacefully asleep. I envy my sweet husband's ability to sleep/snore through anything. The episodes are becoming more frequent. The respite we enjoyed for a year seems like a distant memory. She has started
While running errands a few weeks ago, I ran into an old acquaintance. We were catching up with the usual pleasantries. “How is your son? Does he have a steady girlfriend?” I replied, “No, but he and his boyfriend have been together for more than a year and a half.” With a horrified and shocked look, followed by a snarky reply, she inquired, “Well, how is that?” I gave a quizzical glare until she finished. On some level, my mind knew where her comment was going, “Having a gay son?” After what I am sure was an equally, if not more, shocked look in my eyes, followed by an image in my mind, playing out like a seventies cartoon of a baseball hitting her upside the head. I replied with, “I don’t know. What is it like having a heterosexual son?” My response left her speechless, and we soon parted ways. Since that afternoon, I have not been able to shake the insensitive encounter from my thoughts. I am unsure if it was the underlying tone of her question that offended me. Perhaps it
I am beyond grateful to have my sister, mom, aunt, and mother-in-law's constant contact and their help behind the scenes, being my pillars, supporting me so that I can better support Jayde. It truly does take a village, and these women are my tribe. I know my post from last night was not easy to read. It was challenging to write and share. Yesterday was mentally and emotionally messy. In life, sometimes, you need to create more chaos to clean up the original mess. Jayde is still struggling to process everything happening inside her body right now, but she is mentally doing somewhat better. Witnessing lifeline helicopters flying in and out, at all hours of the day and night, helps keep her current circumstance in perspective. Regardless, we are secure in knowing she is where she needs to be to receive the best possible care. To help everyone following Jayde-Rhiannon's journey better understand how we arrived here, she has lost twenty-four pounds in the last three to four mon