We're Off To See the Wizard

 



The elevator speaks with the sweet voice of a child. The brightly colored art is familiar, like an old friend. While we walk in together, as we have countless times before, she voices, "I am nervous." "I completely understand. After your last experience several weeks ago, of course, you are." She expresses her anxiousness again as the nurse asks questions and takes her vitals. I assure her, "Momma Bear is here. We've got this."

Sadly, this was once the only place, other than home, where she felt comfortable...at ease. The place where people did not stare, question, or judge. A place where she knew she could be among her own kind.
This morning, while getting dressed, the phrase, "We are off to see the Wizard," was streaming through my mind. Go ahead, try reading that again without singing it. We have always thought of Jayde's cardiologist as the wizard of her medical journey. He has opened doors we never could have as a parent and patient. His wisdom has been life-changing for Jayde. Today was no different, as my beautiful girl gained several new doctors. Today her faith in her medical team was restored once more, as she tossed her long red locks knowing there is no place like home. Today we also realized the blankets are really shrinking, or Jayde has really grown.








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