The Silver Lining of Not Giving Up
Yesterday was Jayde's first
in-home IV therapy. Arriving at this day was not without its share of
roadblocks, frustration, and chaos. I think what infuriated me the most was,
our insurance covers 100% of everything. We have very minimal copays and exceptional
prescription coverage. Yes, I know how fortunate we are. Since Jayde became
ill, I am grateful every single day for Chris taking a job that we were not
sure he should take. Yet, with 100% coverage, I still had to spar with several
individuals, including the president of the Wellspan VNA. Our medical supplies
person told me yesterday, "You are one badass lady." I laughed and
replied, "I make no apologies for being a Momma Bear." What he said
next left me saddened, "Yeah, but most parents would have just given
up." My following response will clarify the sadness, "I can't give up
because that would mean giving up on her, and that is not an option."
A few days ago, I discussed health insurance with someone who pays $13,000 a year in
insurance premiums for a mother, father, and child, with a $13,000 deductible.
I cannot even fathom dealing with those amounts, especially in addition to
having a child as sick as Jayde. Yet, too many families are.
Through our journey, I have met a few individuals and read countless stories from people Jayde's age, whose parents have just given up. Some are due to bad parenting, but most are simply exhausted, confused, and cannot afford appropriate care. So instead of fighting back, they throw their hands in the air and walk away because that is what the system wants them to do–quit.
Thankfully, after a week of
battles, numerous phone calls, and a heaping dose of apprehension over
yesterday's appointment, it all culminated in two kind nurses visiting our home. Jayde
sat in her recliner, receiving IV therapy in the comfort of our living room–and there is our silver lining.