The Silver Lining of Not Giving Up
Yesterday was Jayde's first in-home IV therapy. Arriving at this day was not without its share of roadblocks, frustration, and chaos. I think what infuriated me the most was, our insurance covers 100% of everything. We have very minimal copays and exceptional prescription coverage. Yes, I know how fortunate we are. Since Jayde became ill, I am grateful every single day for Chris taking a job that we were not sure he should take. Yet, with 100% coverage, I still had to spar with several individuals, including the president of the Wellspan VNA. Our medical supplies person told me yesterday, "You are one badass lady." I laughed and replied, "I make no apologies for being a Momma Bear." What he said next left me saddened, "Yeah, but most parents would have just given up." My following response will clarify the sadness, "I can't give up because that would mean giving up on her, and that is not an option."
A few days ago, I discussed health insurance with someone who pays $13,000 a year in insurance premiums for a mother, father, and child, with a $13,000 deductible. I cannot even fathom dealing with those amounts, especially in addition to having a child as sick as Jayde. Yet, too many families are.
Through our journey, I have met a few individuals and read countless stories from people Jayde's age, whose parents have just given up. Some are due to bad parenting, but most are simply exhausted, confused, and cannot afford appropriate care. So instead of fighting back, they throw their hands in the air and walk away because that is what the system wants them to do–quit.
Thankfully, after a week of battles, numerous phone calls, and a heaping dose of apprehension over yesterday's appointment, it all culminated in two kind nurses visiting our home. Jayde sat in her recliner, receiving IV therapy in the comfort of our living room–and there is our silver lining.