Serendipitous Girl

October is Dysautonomia Awareness Month, and October 25 marks the annual POTS awareness day. Just as no two journeys are identical, the path to a POTS diagnosis is different for each patient. However, as Jayde-Rhiannon and I have discovered, the lengthy road to a diagnosis is usually full of speedbumps and hairpin turns. A month shy of turning forty, I had a total hysterectomy. It was a necessary evil. While taking care of certain parts of my health, my surgery threw me headfirst into menopause overnight. Menopause really should not be a taboo subject. If it weren't, maybe I would not have been surprised by the alien that took over my body, but that is a subject for another day. Insomnia and hot flashes were the worst and lingering side effects of my body laughing and shouting, "You are no longer in your twenties." However, on the plus side, I was told the migraines I had experienced since I was six should see a drastic improvement. Thankfully, they did. Gone were the two...

This post was written in the summer of 2016. It is the recognizable beginning of Jayde's Journey. Little did I know when I wrote it that POTS should have been the least of our worries, but each time I read it, so much makes sense. I was sitting in my kitchen, talking with two dear friends, and they encouraged me to share the recent journey our family has experienced. From this conversation, I knew I needed to share Jayde's journey. Thus, #jrsjourney grew wings. This post is a mother's/caregiver's view of what living with POTS is like. I once believed our journey began the first week of November 2009, when Jayde became ill with the Swine Flu, but the swine flu only made the invisible more visible. Jayde was two when she had her first migraine. When I was six, I encountered my first one. So, I knew how debilitating and horrible they were. At first, the thought that she could be experiencing a migraine at the age of two did not seem possible. Until she said, "Mommy, t...