Rare Disease Day 2019
It is ironic how one little word can have a variety of connotations. How one simple word can prompt your heart to sink or make it soar. Normal. What is normal? For years, we shunned normalcy. Normal is boring, be you, whatever you are. Why attempt to live your life fitting into a box society believes you should be in when you were born to stand beside it in all your glorious self? We adopted this mantra as we navigated raising an adolescent with mental illness. An adolescent who desired to be anything but himself. The mantra, which seemed to suit Jayde-Rhiannon, was from a favorite book, “My darling girl, when are you going to realize that being normal is not necessarily a virtue? It rather denotes a lack of courage." Having been raised to believe that fitting in was necessary, I wanted the opposite for my children. I wanted them to understand it was all right to be who they were, never fearing to say what they felt. This would come back to bite me many times as their personali...